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Care resources for patients with Parkinsonism

Published:November 23, 2022DOI:https://doi.org/10.1016/j.jns.2022.120502
      Effective follow-up care for patients with Parkinson's disease (PD) and their families integrates clinical care of the motor and non-motor symptoms with a referral process for physical therapy and for addressing occupational and social issues, particularly safety issues about the home. To aid this follow up, it would be helpful to have a concise reference of community-based resources from which selected information can be provided to patients during their clinical visits. A reference guide of this sort (Table 1) will be of particular help to clinicians without access to the ancillary support services found at a university or major medical center.
      Table 1Care Resources for Patients with Parkinsonism*.
      Resource Need Organization Phone Website Email Address
      Parkinson's Disease Parkinson's Foundation 800–473-4636 https://www.parkinson.org [email protected]
      Michael J Fox Foundation 800–708-7644 https://www.michaeljfox.org [email protected]
      American Parkinson's disease Association 800–223-2732 https://www.apdaparkinson.org [email protected]
      Parkinson's UK 020–7931-8080 https://www.parkinsons.org.uk [email protected]
      Medical News Today https://www.medicalnewstoday.com
      Community Resource Information 211 Help Line 211 https://www.211.org [email protected]
      Exercise and Balance Rock Steady Boxing 317–205-9198 https://www.rocksteadyboxing.org/parkinsons-boxing-classes [email protected]
      Dance for PD 800–957-1046 https://danceforparkinsons.org [email protected]
      Yoga https://www.yogaalliance.org
      Qi Gong https://www.qigonginstitute.org/directory
      Go4Life https://www.nia.nih.gov/health/exercise-physical-activity
      Home Safety Checklist American Association of Retired Persons https://assets.aarp.org/external_sites/caregiving/checklists/checklist_homeSafety.html
      Speech and Swallowing Lee Silverman Vocal Technique Directory 888–438-5788 https://www.lsvtglobal.com/LSVTFindClinicians [email protected]
      Mental Health 988 Suicide & Crisis Lifeline 988 https://988lifeline.org
      OnlineTherapy.com 800-258-9936 https://www.onlinetherapy.com
      Hiring a Caregiver National Alliance for Caregiving 202–918-1013 https://www.caregiving.org [email protected]
      Meals/Nutrition Meals on Wheels America 888–998-6325 https://www.mealsonwheelsamerica.org [email protected]
      Transportation My Mobility Plan https://www.cdc.gov/motorvehiclesafety/older_adult_drivers/mymobility
      Rides in Sight: Transit/ Paratransit Options 855–607-4337 https://www.ridesinsight.org
      Insurance and Medicare Assistance State Health Insurance Assistance Programs 877–839-2675 https://www.shiphelp.org/
      Durable Medical Goods Medicare Supplier Directory https://www.medicare.gov/medical-equipment-suppliers/
      Fraud Protection AARP Fraud Fighters 877–908-3360 https://www.aarp.org/money/scams-fraud/
      National Council on Aging https://www.ncoa.org/older-adults/money/management/avoiding-scams
      Prescription Drugs BeSafeRx https://www.fda.gov/drugs/quick-tips-buying-medicines-over-internet/besaferx-your-source-online-pharmacy-information
      Financial Considerations Paying for Senior Care 855–481-6777 https://www.payingforseniorcare.com/parkinsons/financial-assistance
      Clinical Trials NIH Clinical Trials https://www.clinicaltrials.gov
      Michael J Fox Foundation

      Trial Finder
      800–708-7644 https://www.michaeljfox.org/trial-finder
      PD Caregiver Resources Family Caregiver Alliance 800–445-8106 https://www.caregiver.org/connecting-caregivers/fca-carenav/ [email protected]
      AARP Resources for Family and Caregivers 877–333-5885 https://www.aarp.org/caregiving/

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