Care resources in the United States for patients with parkinsonism

Published:November 23, 2022DOI:
      Effective follow-up care for patients with Parkinson's disease (PD) and their families integrates clinical care of the motor and non-motor symptoms with a referral process for physical therapy and for addressing occupational and social issues, particularly safety issues about the home. To aid this follow up, it would be helpful to have a concise reference of community-based resources from which selected information can be provided to patients during their clinical visits. A reference guide of this sort (Table 1) will be of particular help to clinicians without access to the ancillary support services found at a university or major medical center.
      Table 1Care Resources in the United States for Patients with Parkinsonism.
      Resource Need Organization Phone Number Website Email Address
      Parkinson's Disease Parkinson's Foundation 800–473-4636 [email protected]
      Michael J Fox Foundation 800–708-7644 [email protected]
      American Parkinson Disease Association 800–223-2732 [email protected]
      Parkinson's UK 020–7931-8080 [email protected]
      Medical News Today
      Community Resource Information 211 Help Line 211 [email protected]
      Exercise and Balance Rock Steady Boxing 317–205-9198 [email protected]
      Dance for PD 800–957-1046 [email protected]
      Qi Gong
      Home Safety Checklist American Association of Retired Persons
      Speech and Swallowing Lee Silverman Voice Treatment Directory 888–438-5788 [email protected]
      Mental Health 988 Suicide & Crisis Lifeline 988 800-258-9936
      Hiring a Caregiver National Alliance for Caregiving 202–918-1013 [email protected]
      Meals/Nutrition Meals on Wheels America 888–998-6325 [email protected]
      Transportation My Mobility Plan
      Rides in Sight: Transit/ Paratransit Options 855–607-4337
      Insurance and Medicare Assistance State Health Insurance Assistance Programs 877–839-2675
      Durable Medical Goods Medicare Supplier Directory
      Fraud Protection AARP Fraud Fighters 877–908-3360
      National Council on Aging
      Prescription Drugs BeSafeRx
      Financial Considerations Paying for Senior Care 855–481-6777
      Clinical Trials NIH Clinical Trials
      Michael J Fox Foundation Trial Finder 800–708-7644
      PD Caregiver Resources Family Caregiver Alliance 800–445-8106 [email protected]
      AARP Resources for Family and Caregivers 877–333-5885


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