Variations in public and professional stakeholders' awareness and attitudes on diagnosis and care provisions for dementia — A national survey

      Introduction: Sir William Beveridge Foundation (SWBF), a charity based in London & Bangladesh pioneered a service provision for Dementia care in Bangladesh (population 166 million). There is no specific clinical or governmental strategy despite increasing size of the patient cohort and expanding economy.
      Objectives: To assess the baseline situation and advise the government to develop a clinical, educational and socio-political strategy for Dementia care.
      Patients and methods: A mixed methodological approach of quantitative survey and Qualitative appraisal of seven categories of stakeholders ranging from policy makers to carers and clinicians. Purposive sampling on stakeholders from seven cities was performed.
      Given the prevalence rate, population size, confidence level and design effect, the sample size of different categories of respondents was estimated using the general formulae (Cochran):

      Total sample size >1000 people e.g. 65 clinicians who have treated about 90,484 patients that year. Data collection methods included telephone, face to face and internet based interactions. Response rate was 70%.
      Outcome tools: Semi-structured questionnaire, in-depth interview, Talking Points for key Informant Interviews.
      Results: There is wide-spread variation in the level, accuracy and source of knowledge and perceptions amongst and within specific categories of stakeholders. Comparison analysis with prevalence data from Alzheimer's International, it appears that number of AD patients in Bangladesh will be 1.781 million in 2050.
      Conclusion: An evidence-based formal national Dementia Awareness Campaign is now possible. A multi-pronged educational approach is needed for clinicians, charities and society at large.