Journal of the Neurological Sciences
Volume 238, Issue 1 , Pages 1-2 , 15 November 2005

“Individual and health-related quality of life assessment in amyotrophic lateral sclerosis patients and their caregivers” by Lo Coco G, Lo Coco D, Cicero V, Oliveri A, Lo Verso G, Piccolo F, La Bella V

Received 22 June 2005

References 

  1. Bradley WG, Anderson F, Gowda N, Miller RG ALS CARE Study Group. Changes in the management of ALS since the publication of the AAN ALS practice parameter 1999. Amyotroph Lateral Scler Other Motor Neuron Disord. 2004 (Dec);5(4):240–244
  2. Bourke SC, Bullock RE, Williams TL, Shaw PJ, Gibson GJ. Noninvasive ventilation in ALS: indications and effect on quality of life. Neurology. 2003 (Jul 22);2261(2):171–177
  3. Bremer BA, Simone AL, Walsh S, Simmons Z, Felgoise SH. Factors supporting quality of life over time for individuals with amyotrophic lateral sclerosis: the role of positive self-perception and religiosity. Ann Behav Med. 2004 (Oct);28(2):119–125
  4. Trail M, Nelson N, Van JN, Appel SH, Lai EC. Major stressors facing patients with amyotrophic lateral sclerosis (ALS): a survey to identify their concerns and to compare with those of their caregivers. Amyotroph Lateral Scler Other Motor Neuron Disord. 2004 (Mar);5(1):40–45
  5. Bromberg MB, Forshew DA. Comparison of instruments addressing quality of life in patients with ALS and their caregivers. Neurology. 2002 (Jan 22);58(2):320–322
  6. Chio A, Gauthier A, Calvo A, Ghiglione P, Mutani R. Caregiver burden and patients' perception of being a burden in ALS. Neurology. 2005 (May 24);64(10):1780–1782
  7. Adelman EE, Albert SM, Rabkin JG, Del Bene ML, Tider T, O'Sullivan I. Disparities in perceptions of distress and burden in ALS patients and family caregivers. Neurology. 2004 (May 25);62(10):1766–1770
  8. Lo Coco G, Lo Coco D, Cicero V, Oliveri A, Lo Verso G, Piccolo F, et al. Individual and health-related quality of life assessment in amytrophic lateral sclerosis patients and their caregivers. J Neurol Sci. 2005;238:11–17
  9. Hickey AM, Bury G, O'Boyle CA, Bradley F, O'Kelly FD, Shannon W. A new short form individual quality of life measure (SEIQoL-DW): application in a cohort of individuals with HIV/AIDS. BMJ. 1996 (Jul 6);313(7048):29–33
  10. The World Health Organization Quality of Life Assessment (WHOQOL): development and general psychometric properties. Soc Sci Med. 1998 (Jun);46(12):1569–1585
  11. Neudert C, Wasner M, Borasio GD. Individual quality of life is not correlated with health-related quality of life or physical function in patients with amyotrophic lateral sclerosis. J Palliat Med. 2004 (Aug);7(4):551–557
  12. Chio A, Gauthier A, Montuschi A, Calvo A, Di Vito N, Ghiglione P, et al. A cross sectional study on determinants of quality of life in ALS. J Neurol Neurosurg Psychiatry. 2004 (Nov);75(11):1597–1601
  13. Goldstein LH, Atkins L, Leigh PN. Correlates of Quality of Life in people with motor neuron disease (MND). Amyotroph Lateral Scler Other Motor Neuron Disord. 2002 (Sep);3(3):123–129

PII: S0022-510X(05)00229-7

doi: 10.1016/j.jns.2005.06.010

Journal of the Neurological Sciences
Volume 238, Issue 1 , Pages 1-2 , 15 November 2005

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